Hanging On!

It’s hard to believe that January has passed and February is being ushered in with a forecast of six more weeks of winter! Thank you very much, Sir Walter Wally, the groundhog who prognosticates here in North Carolina! One ice storm last month was enough winter for me!

I’m sad and frustrated to say that even after another increased dose of the research drug on January 19, I have had no improvement. Muscle pain is ever present due to continuing low blood phosphorous. Our precious Home Health Nurse, Katy, was here this morning to do lab work. I’ll be having it done once a week for a while to better track values.

I was determined to do our youngest grandson’s baptism on Sunday. With many prayers, I made it through and it was wonderful! Tucker is a sweet baby! Not one peep out of him! Just a stunned look when the first handful of water touched his head! He never moved! Yesterday and today I have been very weak. I believe I used a week’s worth of energy on Sunday. As I was looking for a prayer recently, I came across one that I had saved years ago by Edger A. Guest. It certainly speaks to me today! One day at a time, Sweet Jesus!


Grant me, O Lord, the strength today

For every task which comes my way.

Cover my eyes and make me blind

To petty faults I should not find.

Open my eyes and let me see

The friend my neighbor tries to be.

Teach me, when duty seems severe,

To see my purpose shining clear.

Let me at noon time rest content

The half-day bravely lived and spent.

And when the night slips down, let me

Unstained and undishonored be.

Grant me to live this one day through

Up to the best that I can do.

Peace be with you, Donna


  1. Pat Churchman
    Feb 2, 2016

    Oh Donna, I’ve been so in hopes that this drug would bring you some relief. How long do they stick with it if it’s not working?
    Thank you so much for the birthday card and letter and and cute little handmade card. It’s propped up on the table, so I can see it and think of you.
    I picked up Charles from the H’burg Rehab yesterday. That followed his hospital visit with double pneumonia. He got MRSA at the hospital. It was a comedy of errors, which, I suppose, is better than a tragedy of errors. Love you,

  2. Shannon Tate
    Feb 2, 2016

    Phil, the one in Pennsylvania, I think has issued the same prediction. One snowfall of 23.5 inches was enough winter for me. It is still hanging on a bit in the backyard and about 18 inches away from finding the curb at the front of the house. The exciting news is that the crocus are still blooming and the jonquils are budding. Spring – Hope and the sure knowledge that life abounds. Donna, I sure am sorry to hear that the extra boost of stuff did not bring you and relief. Harold and I continue to keep you, Terry and your family in our prayers.
    Hugs and love, Harold and Shannon

  3. Jean Holt
    Feb 2, 2016

    You have been close in my heart, especially during the snow, thinking of you and your thoughtful cup of tea. You lift me up every day, and I send you hugs and warm, peaceful cups of tea! Love, Jean

  4. Mary Jo Andersen
    Feb 2, 2016

    Sorry you are having so much pain! Just wanted you to know to know I’m thinking of you. You are always in my thoughts and prayers. You have been through so much and have remained so strong! I admire your strength and your steadfast faith!
    You are an amazing woman and I feel so blessed to have you as a friend! Just know that I am sending you love, hugs and prayers!
    Mary Jo

  5. Mary Himelright
    Feb 2, 2016

    A beautiful prayer offering, Donna. So very disappointed that the results are not what had been hoped and prayed for and that your pain is still such a heavy burden. Will keep you lifted up for comfort and strength. Love to you always…

  6. Megan Limburg
    Feb 3, 2016

    Love your image of Tucker’s stunned look when grandma so gently put that water on his head! We love you and Terry, and prayers always.

  7. Jean McDonald-Walker
    Feb 3, 2016

    So sorry to hear that the medicine is not being cooperative! Boo Hiss to it! But I know it took much effort to write the e-mail and I so appreciate hearing from you. This way I can tell my prayer partner how we should pray for you today and tomorrow and….

    Love to you, Donna. Jean

  8. Tam Larson
    Feb 3, 2016

    You have my love and prayers!

  9. Beverly Silver
    Feb 3, 2016

    Donna I am so sorry the trial meds seem not to be working as had been hope for. I am so sorry for your constant pain. Thanks for working even thru the pain to take the effort to share . My prayers will be for you and Terry, and for you to be able to endure and for the meds to soon work better for you. We did have a very moving sunday – our house church – Shalom was in charge of the service, and our new minister and her family were present for the first time. Love to all of you and prayers for healing and relief. Beverly

  10. Terry McKay
    Feb 3, 2016

    Donna, your bears keep giving comfort. I just sent one to a friend who recentlyu lost her husband. She called to say how much it meant and what a wonderful ministry it was. Your love touches so many that you will never know or see. Thanks for your loving creativity. You and Terry are sorely missed here. I am so sorry this trial has not helped your condition and that you are still experiencing so much pain and fatigue. You and Terry are continuously in my thoughts and prayers. Love, blessings, and peace to you both.

  11. JoEllen Delamatta
    Feb 3, 2016

    Blessed prayer shared. Know my thoughts, prayers and hope go forth to the throne room to remedy the pain that lingers. Love both you and Terry!

  12. Kitty Hahn-Campanella
    Feb 3, 2016

    Hey Donna,

    That baptism was totally worth the effort. I saw the beautiful photo.

    You are such a gift as grandma and pastor!

    I wish that you were not suffering and I wish the experimental drug was more effective.

    Know that I am holding you in the light and I thank God for these precious days with your family.

    Much love, Kitty

  13. Bruce Elliott
    Feb 3, 2016

    You are amazing. In the midst of your pain and suffering each day you offer guidance to give us hope and look for God’s best in everyone and everything we come across in our lives.
    Thank you for being a blessing. Prayers continue.

  14. Gerrit McDaniel
    Feb 3, 2016

    So sorry the medication did not work and the pain is not relieved. Prayers continue and thanks for the update to help us pray better

  15. Sarah Phelps
    Feb 4, 2016

    Dear Donna. Steve and I are sending you all sorts of loving thoughts. Please know we are thinking of you and Terry and hoping for the drugs to start working. How wonderful that you were able to officiate at your sweet baby Tucker’s baptism! Much love from Sarah

  16. melodie davis
    Feb 4, 2016

    I can imagine the look and the love you poured over that child and the connection you’ll have forever. May you have continued strength and some release from that muscle pain. I’m guessing that Tucker wasn’t the only one with a wet face that day … so moving even here reading it! Bless you and your family, & love and prayers.

  17. Donna, you don’t know me, but I was given this link because of someone you do know, Melodie Davis. She named you as an inspirational Pilgrim on life’s journey on my blog post today. I read this post and send you prayers to add to the many others who hold you up. May you indeed “live this one day through.” It’s very apparent that you are doing the “best that you can do.”

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